Healthwatch Wandsworth response - No Rights Ignored-No Voices Unheard
What we did
We focused on responding to question 2 of the consultation which we believed had many elements within it that could be relevant to the people we spoke to.
In 2015 we visited various local groups such as:
- The Mental Health Support Group
- A Local Charity
- The Learning Disability Group
- Carers support Groups
We asked these groups whether they felt they were being listened to when their care/support is being discussed.
At the carers support group we asked whether the person they cared for is being listened to when their care/support plan is being discussed.
What We Found
Feedback from the Local Mental Health Support Group:
- “Once a year you meet to receive your support plan, then you don’t see anyone again for another year, no follow ups.”
- "Things change in a year and there is no opportunity to meet and review your progress or change your plan due to circumstances.”
- "Some didn’t know that they could change their mind if they were not happy with their support/care plan."
Feedback from the Local Charity:
- "I would like to talk about the future and jobs."
- "I would tell staff at the charity if I am not happy.”
Feedback from the local Learning Disability Group:
- “I have to keep telling my doctor to stop using medical jargon because I have a learning difficult and I cannot understand it.”
- “I am involved in about 50 – 70% of the time when it comes to decisions about my care/support plan.”
Feedback from the local Carers Support Group:
- "Professionals are not listening to carers and carers are being left out of conversations and not being respected as the person’s expert.”
- "Lots of carers feeding back that they do not have a care/support plan in place for the person they care for.”
- "Care plan has to be more flexible – an annual review meeting is not feasible as circumstances change and these changes are not taken to account as no follow up from annual meeting.”
Some of the feedback and the stories we collected are included in the attached report below:
If you need this report in a different format, please e-mail
enquiries@healthwatchwandsworth.co.uk or call 020 8516 7767